Raymond A. Wood Foundation: Overview and Background

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The Raymond A. Wood Foundation is a nonprofit organization formed in 2017 by parents seeking better support and resources for individuals facing craniopharyngioma and hypothalamic-pituitary brain tumors. Established in response to their child’s experience with this rare condition, the foundation has grown into a trusted support network for survivors and caregivers across the globe.

From its beginnings, the organization has operated as a parent- and patient-led initiative. Its work centers on addressing the significant challenges caused by these complex brain tumors, including long-term health complications and the need for ongoing medical management. The foundation serves as a bridge between families, healthcare professionals, and researchers, offering a centralized place for guidance and community.



The Raymond A. Wood Foundation maintains open availability throughout the week. Its online platform, outreach email, and direct phone line allow families and survivors to access guidance whenever needed. With a mission rooted in compassion and practical support, the foundation continues to expand its resources, partnerships, and educational efforts to improve the lives of those affected worldwide.

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